All posts by Stacey D.

Currently.

I stole this from Alison since I thought it was fun!  And no it’s not diabetes related 🙂

Current Book (on my Kindle): The Girl who Kicked the Hornets’ Nest.  It’s the third of Stieg Larson’s Millenium trilogy and I would highly recommend these books to anyone.  If I had to rate them all, I think the second one is the best but they’re all very good.   

Current Playlist: I have a wide variety of music on my iPod but usually like upbeat, dance or pop music.  At times I can be in a Creed or Kings of Leon kind of mood.

Current Shame Inducing Guilty Pleasure: I have been craving cupcakes since last week.  I have not yet given in but I may just do that in the near future!

Current Color: My color is always grey.  Simply put.

Current Drink: Diet Dr. Pepper.  I can’t seem to get enough of it lately.

Current Food: I had a chopped salad for lunch yesterday and am wanting another today so I guess it’s chopped salad. 

Current Favorite Show: Bones.  That is my all time favorite show.

Current Wishlist: I am currently really wishing for my leg to get better.  I’m getting sick of being in constant pain and having to limit my activities.

Current Needs: I need a vacation terribly.  My stress level is at an all time high.

Current Triumphs: I’d have to say my most recent triumph was successfully (and finally) closing on our apartment.  That process was so grueling and tedious, I always thought I’d count that as one of my biggest accomplishments if it ever was completed.  Well we closed about 2 months ago so yay accomplishment and triumph!

Current Bane of my Existence: I’m going to plead the 5th on this one.

Current Celebrity Crush: Dwayne Johnson.  Always.

Current Indulgence: I indulge in sleeping late every chance I get!  You can count that as indulgence right?

Current Blessing: I am blessed with many things.  If  I had to choose one that has been recently obvious, I’d say my health insurance.  I know so many people who don’t have insurance at all or aren’t covered for much or have to fight with their companies constantly, I feel extremely blessed for the good coverage that I have. 

Current Outfit: It’s the winter so if I’m not in work clothes, you’ll find me in a velour suit + Uggs 😉

Current Excitement: Thinking of using the spa gift card that my sis got me for Christmas.  Massage, here I come! 

Current Link: I just love cute, fuzzy animals.  So it’s no surprise that I love videos like this one.

Happy New Year!

I didn’t really have the time to do a whole 2010 reflection like others have (and I loved reading them by the way!) but I did want to send a message to all my readers.

I wish each and every one of you, your families and friends a very healthy and happy new year.  May 2011 be a year full of successes, good memories and experiences.  I am looking forward to riding through the next year of life with all of you 🙂

Twenty Nine.

I don’t know if now is the best time to be posting about this since for some reason I am feeling very down.  But as I thought about passing on the idea, I thought that maybe writing something after the fact, wouldn’t have the same meaning.  So here I am.

29 years ago today, I was diagnosed with type 1 diabetes.  Some freaking Christmas present huh?  The first thing I think is wow,  I feel old.  I’ve had diabetes longer than most of my analysts at work have been alive.  I’ve had diabetes longer than a lot of people have been alive.  Wow.  I know there are many people around who have had it longer than I.  But 29 years is nothing to sneeze at.  Thinking back on the day doesn’t bring back memories of any kind since I can’t really remember.  But I do know the story thanks to my parents.

It was Christmas eve and my family had started arriving at our house for the holiday.  I was constantly drinking and peeing.  Since my father was a type 1 himself, he recognized the symptoms right away.  This was before blood glucose monitoring was available to patients at home, so my parents tested my glucose level with a urine strip.  And it was dark.  They called my father’s endocrinologist and were told to bring me to the emergency room.  Which they did, having to leave my poor twin sister with relatives.  When the hospital was informed of a 5 year old with high blood sugar coming in, they expected a very sickly child.  Instead I was walked in holding my father’s hand.  If I remember the story correctly, my actual blood glucose once at the hospital was high 300’s so there was no doubt diabetes was what I had.  But it was nowhere near as high as it could have been, if it had gone undiagnosed for a long period of time.  Long story short, I was admitted for about a week then transferred to a different hospital where the pediatric endo my parents wanted me to see practiced.  Again I don’t remember any of this but I can only imagine what my parents and sister went through.

Overall I am doing good all these years later.  I’ve had some minor issues that could be related to diabetes (but not proven).  And I find the longer I am living with it, the more it is weighing on me.  I think what bothers me the most about “celebrating” so many years with diabetes is the unknown future.  I know of all the things that could happen.  And that truly scares me to death.  So I do what I have to do and try not to think about those things.  What I have in my favor are all the advancements that have been made in the treatment.  I used to take just 1-2 injections of insulin a day.  And tested my blood sugar only 1-2 times a day.  These days, I have a continuous delivery of insulin via an insulin pump which acts more like a real, working pancreas.  And not only do I test my blood sugar 8-12 times a day but I also have a sensor under my skin which feeds glucose level readings about every 5 minutes from my interstitial fluid.  Now that is advancement!  I know there are organizations working on finding a cure for diabetes.  And not to sound pessimistic, but I don’t feel that I’ll ever see that day in my lifetime.  My father and I were told probably not long after I was diagnosed that a cure was 10 years away.  Well here it is 19 years after that and still no cure. But I am still grateful for their hard work.

As much of a thorn as diabetes is in my Christmas eve, I do have a lot to be thankful for.  I hope that I will have many more Christmas eves to reflect on years past.  I know some of my D friends don’t know the exact date of their diagnosis.  I unfortunately, can never forget.

***I wish all my friends and their families a very happy holiday.  And best wishes for a healthy, happy 2011 for everyone***

Great Doctor. Great News.

“I’m not going to lose my leg!  I’m not going to lose my leg”!  That is what was repeated in my mind over and over again earlier today.

It started about 3 weeks ago when I began having pain in my lower right leg.  I didn’t do anything to injure it so it pretty much started out of the blue.  It trickles down to my ankle/foot area at times.  The pain is at its peak when I walk.  It’s not to the point that I cannot walk but it does hurt something fierce.  To some people, this may not seem like a big deal.  Some people may be able to grin and bear it.  But I have diabetes.  And there are so many things that can go wrong with my legs.  I first went to a walk-in-kind-of-place to have it looked at last weekend and they sent me to the ER where I waited hours and hours to have a Doppler test to check for a blood clot.  That test came back okay thank goodness.  But it didn’t explain the pain. Since I wasn’t sure what type of doctor to see, I listened to my hubby’s suggestion of seeing an orthopedic doctor.  I had been to an office already 2 years ago when I had my trigger thumb surgery so it’s not like I had to find a new place.  So today I went.

Although I had been to this office before, I was seeing a new doctor.  They brought me in to the exam room and gave me paper shorts to wear.  (And yes, I looked really sexy! 😉 ) When the doctor came in, I immediately liked her.  She was so pleasant and I can actually see her listening as I described my symptoms.  The first thing she did was feel my leg and she knew exactly where to touch it that hurt the worst! She said she knew exactly what it was.  Shin splints.  After finishing my exam, she sent me down the hall for x rays.  I was sitting there in my bright blue paper shorts and Ugg boots.  An older woman came out of the x ray room, looked at me and said “boy don’t you look cute!”  We exchanged some laughs and nice words and she was on her way.  After she left, I sat there by myself and the thought of all the pain I’ve been having being from shin splints weighed on my mind.  And the notion that this was something treatable, not life threatening and most importantly not something that was going to put the life of my leg in jeopardy, brought tears to my eyes.  I still tear up thinking of how scared I was.  How I was thinking there was something seriously wrong with my leg.  That is was the start of diabetes complications.  That it may lead to me losing my leg.  And the relief I feel that it is not what I was imagining, is indescribable.

The x rays didn’t show anything which is good. She said there is a very slight chance I could have a stress fracture but she doesn’t think it’s likely.  I need to limit my activities (bummer!), take some pain relievers and begin physical therapy.  This is going to be a pain in the a** but definitely something I can deal with.  And hopefully the therapy will help the pain let up so that I can get back to normal.  This is one doctor I really, really liked and one visit that I really, really appreciated.  There is something wrong with my leg and it does hurt.  But the fact that it is only shin splints, is great news.

Enough

12/1  5:59pm 251

12/1  3:39am 266

11/30  6:18am 209

11/29  11:03am 239

11/25  9:52pm 236

Sadly, these are some of my blood glucose readings over the past week or so.  And unfortunately there are others like it too in between some random decent numbers.  No pattern.  No apparent reason.  Just.  All.  High.  Living with a pancreas that doesn’t work and using a portable electronic device in its place, there will be high blood sugars.  What my “job” as a diabetic is, is to try and keep those highs to a minimum by giving myself enough insulin (but not too much).  Sometimes though, it doesn’t work the way I want.  When there are days or weeks like these, it gets me feeling like garbage.  Not just physically either.  Emotionally and mentally like garbage too.  I posted a status on Facebook last night “to all my family + friends who don’t have diabetes, be glad you don’t (I am bitter today)”.  I know there are worse conditions or illnesses to have than diabetes.  So when I feel down, frustrated, helpless or overwhelmed in dealing with it, I feel guilty.  Anyone who knows me can attest that I usually have a positive outlook on things.  I’m not a pessimist.  I don’t dwell on the things that aren’t what I’d like them to be.  But sometimes diabetes can get the best of us.  And that’s what is happening to me.  Not being able to control the one thing that is crucial to my overall health is discouraging to say the least.  I’m scared about the impact it will have on my body in the future.  Near or not.  I don’t like how it’s making me feel now.  And the stress of getting it back to where it’s supposed to be is hindering.  I’d say those are valid reasons for feeling upset.  As long as I don’t let it overcome me.

So I’m hoping that I’ve had enough of this high blood sugar streak.  And in turn, I will have had enough of this feeling bad all around and I can go back to my enduring self, monitoring (semi) normal readings.  Fingers crossed!!

Meme Monday!

I have a few topics in mind to share on my blog but was more in the mood for something fun and not exactly thought provoking.  So I stole this from Allison.  Enjoy 🙂

-1- What kind of camera do you have?  a Sony Cybershot point + shoot and a Nikon digital SLR

-2- You just won $1,000 and you have to spend it on yourself on one item. What do you buy? Hmm that’s a tough one.  I love to shop!  I could probably go for either some electronic or a really expensive handbag!

-3-  If you had to choose would you rather live with your parents in the same house forever or 5,000 miles away? Although my mother can get to me at times, she is the only living parent that Joe and I have so I’d rather have her close to us and live in the same house.

-4- Is your Christmas tree up yet?  Nope.  Hopefully in the next week or so we’ll put it up.

-5- Do you bring reusable bags to the grocery store? I should but I don’t.

-6- Which would be worse: listening to the same song on replay for the rest of your life or having to eat the same meal every day for the rest of your life?  I’d have to say eating the same meal every day for the rest of my life.  I don’t even like eating the same thing 2 days in a row, never mind forever!

-7- Name three things you are thankful for this season. Our new home, my family + friends and my “health”.

-8- Do you dye/highlight your hair? If so, do you do it yourself or have it done at a salon?  Contrary to what some people think, I have never gone near my hair with any kind of dye or highlights.

-9- Would you rather watch a movie at home or at the theater?  I like the theater scene with the giant screen, loud sound effects and of course all the movie goodies but I do like being in the comfort of my own couch too.  I’d say at home.

-10- Would you rather win $1,000 a week for life or $5 million at once?  Give me a $1,000 a week for life please 😉

Blessings

It is Diabetes Blessings Week in the diabetes community thanks to Mike declaring it so!  Many other bloggers have accepted his invitation to write a post each day of this week about these blessings.  Although I have fallen short of writing yet, being that it’s the day before Thanksgiving, I thought I’d reflect on some of the blessings for which I am eternally grateful.

Diabetes Blessings

Blessing No. 1 – the many friends across the country that I have made over the past few years.  Living with diabetes is not easy.  But somehow knowing and interacting with people who are dealing with the same or similar things as me made all the difference in the world in the outlook of my own diabetes management.

Blessing No. 2 – the condition of my eyes after having diabetes for almost 29 years.  The report I got yesterday from my long time opthamologist that there is still only minimal signs of diabetes and that whatever signs that are present are not progressing, was music to my ears!

Blessing No. 3 – the means to have an insulin pump and continuous glucose monitor (CGM) to help in my diabetes treatment.  I am extremely blessed to have insurance coverage that includes things like these.  They have made a tremendous difference in my glucose readings over the past few years.

Blessing No. 4 – that I am physically capable of getting the exercise that is so beneficial to my diabetes health.  I currently have no physical limitations to keep me from getting the oh so important activity that my body needs.  Now if only I can seriously get over my laziness!!

Non Diabetes Blessings

Blessing No. 1 – our new home.  We just bought our first place a couple of weeks ago.  As stressful and tumultuous as the buying and moving process was, we now have a beautiful place that is ours 🙂

Blessing No. 2 – my husband.  The 12 years that we have been together (7 and a half of them married) have been wonderful.  We’ve been through some rough times together but in the end I think our love is stronger because of it.

Blessing No. 3 – my family.  I am thankful for the extended family I have but especially my mother, sister, niece and nephew.  I honestly don’t know what I would do without them.

Blessing No. 4 – my job.  Although it keeps me at the office late a lot and brings me stress at times, I am blessed to have a job that provides so well for me. 

I am wishing you and yours a very happy Thanksgiving!  May you have much to be thankful for today and always.  And for those of us who will be counting carbs for the holiday, may your blood sugars be good to you!!! 

Diabetes and Fashion

You may wonder based on the title of this post how the two relate.  You are probably thinking, diabetes and fashion? Well I am about to tell you how there can be a very special relationship between the two.

I was very fortunate to be able to attend a great event early last week.  It was hosted by the Diabetes Research Institute (DRI) and took place in Soho in Manhattan.  It has been quite a while since I have been to that part of the city and it took me a little while to find the right place I was supposed to be at!  But once there, it was a very enjoyable evening.

The purpose of the event was to introduce a special top designed by Tibi owner, Amy Smilovic, for the benefit of the DRI.  Attendees enjoyed some champagne, light snacks and discounted shopping for some beautiful clothing.  The highlight of the evening was when Lindsey Inserra of the DRI presented Amy with flowers in honor of her commitment to contributing to the research of type 1 diabetes.  $100 of the purchase of each top will be donated to the DRI.  You can see for yourself just how lovely they are.

Not only did I get to meet some of the important people who work for DRI, I also had the honor of hanging out with Lindsey, Allison and Kelly.  And that made the evening even better 🙂

And thank you Amy and Tibi for what you’re doing!!

Tibi owner/designer Amy Smilovic and Lindsey Inserra

Fellow diabetes bloggers, advocates and friends Kelly, myself and Allison

(Photos courtesy of Natasha over at the DRI, who also was a great part of the evening by the way)

Six Things About Diabetes

Today is the sixth annual D Blog Day.  (thank you Gina!) Everyone in the diabetes community is blogging about the six things they want people to know about diabetes.  I am going to try my hardest to read them all!  And here is my contribution about my life with the big D.

1.  As much as living with diabetes can suck at times, there are some pretty freaking cool people who have it.  Since becoming active in the diabetes community, I have met and become friends with some awesome people.  And although I’m not the least bit thankful for having diabetes, I am grateful for having met these other PWD!

2. Diabetes is a full time job.  Having to know my blood glucose level never goes away.  It’s every minute of every day of every week of every month of every year.  So yeah, sometimes it gets to me and I get tired and it would more than nice to have a cure.

3. I may look like any normal person on the outside.  People who don’t know me would probably never even guess that I live with a chronic condition.  It doesn’t stop me from doing things like normal people most of the time.  But diabetes is very serious and there are life threatening situations that can arise.  It can take loved ones away from us.  Don’t forget that just because I look just like anyone else.

4. Having the support of other PWD in your life is priceless.  I went the first 20+ years of my diabetic life with support from family and friends.  And although they are great and I would be lost without them, it’s not the same as having encouragement from others who are going through similar experiences.

5. If my blood sugar is high or low, it doesn’t necessarily have something to do with anything I did “wrong”.  There are so very many variables that impact glucose readings that sometimes it can’t be attributed to anything specific.  The human body is complicated and can seem to have a mind of its own at times.

6.  Most importantly, not only are there different types of diabetes (type 1, type 2, LADA and gestational) every case of type 1 is different.  Everyone’s type 1 diabetes varies.  This means that what may work for me, may not work for someone else and vice versa.  There is no “uniform” way to care for diabetes.